My wife and I went to see Grandson William and he's still doing good. They have weaned a few more meds. Dopamine is now 6 (from 20) and NO is down to 5 (from 20) and the heart medicine is lower as well and I think his color looks better.
He seemed very content overall. While we were there he looked like he was having a dream. His eyebrows were up and down and he was making all kinds of faces and opened both eyes for a second. Pretty neat. I love this little guy. I'm praying for better CO2 and PH.
He had his ear muffs off and didn't have the UV light today abd his left foot looked better: