William The Warrior

 I jut realized I needed an update here. William is walking and won't stop. 

William turned 6 at 12:45 AM 3/26/2020. Being a night owl he was still awake so we all sang happy birthday to him. Today he took a ride in a...

So I realize there is a big giant gap between this and the last post. I can try to fill it in. Back in December 2018, we had weaned off the ...

We have been using subcutaneous remodulin since December 2016. We had a 3 day stay in the PICU to transition. Ironically 2 weeks later on C...

 

William has been at Mount Washington since April 12 2016. After being discharged from CHOP William spent just over a week back in the Hopki...