Friday, June 3, 2016

At Mount Washington Pediatric Hospital

William has been at Mount Washington since April 12 2016.
After being discharged from CHOP William spent just over a week back in the Hopkins PICU reuniting with his friends there. We had previously thought going to MWPH was not going to be possible with his PEEP of 12. I was happy to hear from William's JH PICU attending Dr Romer that He had spoken to the docs at Mount Washington and the home care company and they were OK with his current settings and had agreed to accept him as a patient.

In the week prior to discharge William got sick with a rhinovirus. While he was still in the PICU it was not really affecting him too much. Around the time of transfer his secretions had started to get a little worse and he was requiring a bit more FIO2. We had been doing great on 30% or less but for the two weeks after transfer we were up to 40-45%. Gradually this has come back down to 30% most of the time.

There are definitely differences here compared to the ICU. The monitoring was probably the biggest thing to get used to. Originally we were going to be on the first floor in a two patient room paired with another patient that needed a sitter/companion/aid which was reassuring since someone would be in the room all the time with him. Both CHOP and Hopkins have alarms that go to the Ascom phones the nurses carry. Here there are no phone notifications, only the alarms at the bedside and the monitors out at the nursing desk. We actually ended up on the 2nd floor where the infants and toddlers are. William is the big kid on the block and easily 3X as big as the next smallest baby. There are a lot of ex-NICU babies here, some very tiny. So now he is in a room with four kids total but the nurse assigned to him is generally only taking care of three total and is in the room a lot. We don't have a lot of room for his stuff, the only storage is under the crib and one three drawer small cabinet so he only has the basics.

They are dressing him a lot but it's tough for him to not get sweaty because the temps are warm at 72 degrees where he prefers 68-70 plus they have been weaning his diazapam and methadone a lot. Just this week we have weaned them both twice over the past 4 days (one each day)

The staff is nice and helpful. We are communicating with everyone well and getting everything we need addressed.
















16 comments:

  1. I found your blog from an old post on Babycenter and just wanted to tell you sweet William has another person in his corner.

    All of you are amazing and your strength and perseverance makes me cry.

    Thank you for being strong and advocating for this beautiful soul.

    ReplyDelete
    Replies
    1. Thank you. We are now home for one week and doing good. I'll have a post when I have some time. It's busy here.

      Delete
  2. If you don't mind me asking, what is his diagnosis? I see he's been in the hospital for quite some time so I'm happy to hear that you are home! He seems like such a sweet boy. Your family is in my prayers.

    ReplyDelete
    Replies
    1. Water broke at 13 weeks, born premature at 26 weeks, pulmonary hypoplasia, pulmonary hypertension are his biggest issues.

      Delete
  3. Most will say that they always wanted to be a doctor. It was in medical school that they decided to zoom in on the study of pediatric medicine. It is in the 3rd year of medical school that you begin to work with patients more. Pediatrician Totowa

    ReplyDelete
  4. Bosch wiper blades are endorsed by the shops we conversed with more ... of negative reviews you'll find for practically any standard wiper). ... PIAA Super Silicone ..... Trico Exact Fit and Rain-X Expert Fit are two exampl best sliver tweezers

    ReplyDelete
  5. What a fantabulous post this has been. Never seen this kind of useful post. I am grateful to you and expect more number of posts like these. Thank you very much. 여유증수술

    ReplyDelete
  6. What a fantabulous post this has been. Never seen this kind of useful post. I am grateful to you and expect more number of posts like these. Thank you very much. บาคาร่า

    ReplyDelete
  7. If you are looking for more information about flat rate locksmith Las Vegas check that right away. garoto de programa

    ReplyDelete
  8. This comment has been removed by the author.

    ReplyDelete
  9. On the off chance that you have discovered this you are in the situation of purchasing an electric medical clinic bed for either yourself or a friend or family member, or maybe you are simply assisting a companion.
    hasta yatağı

    ReplyDelete
  10. I have bookmarked your website because this site contains valuable information in it. I am really happy with articles quality and presentation. Thanks a lot for keeping great stuff. I am very much thankful for this site. dicom image viewer

    ReplyDelete
  11. If you are looking for more information about Togel Online Indonesia flat rate locksmith Las Vegas check that right away

    ReplyDelete
  12. CBDPOKER | AGEN CEME TERBESAR | BONUS NEWMEMBER UP TO 50% |
    Hai Sahabat Poker Semua,Capek Kalah mulu???? Yuk Gabung dengan Saya di CBDPOKER
    Situs Poker Online Terbaik dan Terpercaya 100%,dengan Tingkat Kemenangan Tinggi dan pastinya tidak ada bot 100% Player vs Player
    Promo Bonus CBDPOKER :
    - Bonus New Member 50% max 1 Juta Rupiah
    - Bonus Deposit Harian 10% max 100rb
    - Bonus Referral 15%
    - Bonus Turnover Mingguan 0,5%
    - Bonus Turnover tiap bulan 100jt dan 1 UNIT MOBIL
    - FREE YAMAHA FREEGO
    Buruan daftar di situs kami dan buktikan sendiri jumlah kemenangan yang akan anda peroleh kunjungi situs kami

    CONTACT PERSON :
    BBM : E3720B20
    WHATSAPP : +62081315891729
    LINE : CBDPOKER
    WECHAT : CBDPOKER
    INSTAGRAM : CBDPOKER
    www.cbdpkr.org
    POKERIDNTERBAIK2020
    Daftar Di Sini
    ARTIKELHITSTERKINI

    ReplyDelete
  13. Pusing kalah terus dan ketika menang gk dibayar?


    Yuk gabung dengan kami, sudah pasti kami bayar kemenangan anda dan kami berikan WINRATE 90%

    Kami tawarkan kepada anda
    > BONUS NEW MEMBER POKER UP TO 50%
    > BONUS NEW MEMBER SPORTSBOOK 50%
    > BONUS NEW MEMBER SLOT 70%
    > BONUS NEW MEMBER TEMBAK IKAN 70%
    > CASHBACK SABUNG AYAM 100%
    > SPORTSBOOK MIX PARLAY CASHBACK 300%
    > MENERIMA SEMUA JENIS TRANSAKSI BANK , OVO , DANA DAN GOPAY

    Yuk, Kunjungi Situs kami atau hubungi Customer Service kami di

    > Line : jumpa.official
    > WA : +6282124313996
    > FB : JUMPAPOKER
    > Twitter : JUMPA.OFFICIAL
    > WeChat : JUMPA.OFFICIAL

    BONUS NEW MEMBER TERBESAR
    AMBIL MOBILNYA DISINI
    BACA BERITA DISINI
    BERITA DEWASA
    TOGELNYA PARA JUARA
    JOKER GAMING SLOT TERBAIK

    ReplyDelete
  14. I really thank you for the valuable info on this great subject and look forward to more great posts. Thanks a lot for enjoying this beauty article with me. I am appreciating it very much! Looking forward to another great article. Good luck to the author! All the best! best pediatric clinic in Hyderabad

    ReplyDelete