Monday, February 29, 2016

PIctures and Videos from CHOP February 2016

Leaving Hopkins PICU

We have arrived!

Having fun with the vent circuit tubing

Milk Scan  - No aspiration seen

Visit from Caleb

Music Therapy with Richard



Facetime with Poppy

William went to the OR for a cardiac catheterization and a bronchoscope. 

Friday, December 18, 2015

Christmas Pictures 2015

Video from the Christmas photoshoot:
William with his Brother and Sister:


New Shoes for Christmas:

Sunday, December 13, 2015

Video updates and William Goes Outside

Catching up on some updating so here are a few recent videos:

October updates!

William got to go outside for the first time ever!


Here's another video of him playing with one of his toys. 

He's doing well. We continue to wean meds and ventilator settings.

Friday, September 4, 2015

Bath in the PICU September 2015

William got his first bath in over a year - "real bath" that is, in water with soap. William does get a bath every night but it's with the hospital bath cloths which isn't quite the same.

Bath Time!

Before the bath he had to get his central line dressing changed. He was pretty calm with his nurse holding him still and looking into her eyes:

Splashing his feet:

I think He likes it

Getting dried off and settled back in:

Afterwards, the water was really dirty. Soaking those feet got a lot of dead skin loose that was able to be scrubbed off.

As far as overall progress, William has been averaging 50% FIO2 and generally doing well. We are making progress toward getting him weaned off the Midaz, Morphine and Dex. If all goes well we should be off them in the next two months. 

Monday, August 31, 2015

August 2015

I still need some updates but here are some pictures from August: